Lichen Planus Member Introductions


#1

Please take a moment to introduce yourself to the community. Everyone here has something to share about Lichen Planus. For the discussion boards, we ask that you keep your full name and location private.


#2

hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.


#3

Life is about health, family and friends, but sometimes its hard to keep focus on what is most important


#4

Founder of the TransGlobal Health Community Center at http://transglobalhealth.com


#5

I’ve received so much helpful information from the lichen planus and lichen sclerosis groups on Yahoo. I look forward to keeping up with any new information/ideas on this site.


#6

hi, I’ve had LP for about 9 years now. I was diagnosed about 7 years ago after a biopsy. Fortunately it’s only on the lower right leg. At one point it was on both legs, but the left has cleared up. I’m really not doing any regular treatment plan. I have some sample cream that the dermatologist gave to me, but it doesn’t seem to really help, so I don’t use it regularly. I’d like to hear from others and see what treatments work for them. I’d like to know…does it ever go away???


#7

Hi, I am Fee from Australia, I am 26 and have been suffering with LP for the last 8 years.


#8

I was diagnosed with Lichen Planus 3 years ago and I strive to learn more about this condition that seems to have such a strong impact on my life.


#9

i have suffered from lichen planus since my mother’s sudden death some 40 years ago


#10

I have oral lichen planus which is being controlled by steroid mouthwash and vulvul lichen schlerosis which is being controlled by ointment. I was in a very bad way a few years ago as my daughter lost a baby at 20 weeks and another at 5 week and my mother was diagnosed with Alzheimers and we had to put her in a home. Unfortunately she has since died.

I am glad to say that my daughter had another baby boy who is doing well and my conditions are being controlled and not causing too much problems at the moment.

I also suffer from all sorts of allergies which probably compound the problem.


#11

I have Lichen Planus and would be interested in chatting with others who have this conditions


#12

I, Dr. Ajit D. Dinkar, am employed as a Professor & Head of the Department of Oral Medicine & Radiology, at the Goa Dental College & Hospital, Bambolim, Goa , INDIA.

We see a number of oral mucosal & dermal lichen planus cases every week and over the last several years have come up with an Integrated pharmaco-therapy which has been showing very promising results. It involves the sequential use of Allopathic, Ayurvedic and Homoeopathic medicines. Although the duration of treatment is almost a little over a year; it is primarily so as there are a number of long periods when the patient is without any medication, in a way you may call it Interrupted Integrated Holistic therapy.

I look forwrad to collaborating with Oral Medicine specialists here to compare results and have multi-centric trials.Individual patients too could write to me, but they are strictly advised to take up the suggested regimen of treatment under supervision of their treating physician & Oral Medicine specialist and where aplicable under the supervision of concerned specialists in Ayurveda and Homoeopathy.


#13

I was diagnosed with this auto-immune disease several years ago, and recently had an outbreak. Looking to find new ideas and any information others might have


#14

i am a 50 year old black female with lichen planus. my life is “hell” especially now that it is summer, short sleeves, RIGHT! I AM SEEKING HELP… THIS IS VERY DEPRESSING TO ME.


#15

Hey everyone,
I am currently in the 11th month of a Lichen Planus outbreak on my feet, wrists and palms. My initial outbreak was in June 1999 and was confirmed by a punch biopsy of an area of my wrist. It was determined at that time it was a drug reaction. I am diabetic and take blood pressure medication as well. All of those drugs were completely changed. My initial outbreak was pretty severe and painful, could hardly walk on my feet at one point. The prescribed med for the LP seemed to make more inflammation?? This outbreak has been less severe, but it’s duration has been nearly a year. The information that I have researched online indicates that recurrences are usually rare and the duration lessened.
This is the least of my problems at this point as I am facing a possible diagnosis of leukemia based on a white blood cell count intially of 26,200 which has only decreased to 25,100 at this point. In some of my reading it has been repeated that lichen planus is considered to be an immunologic disorder which affects the lymphocytes. I have also read that it can be a precursor to cancer.
I am desperate here to find anyone who has had any of these experiences in common with me.
Thank you very much


#16

I have vlp for over 40 years. I just discovered I am not the only one and that this condition is not in my head. I have found a specialist through the web who has made my life much easier and saner.

I just want to help others going throught the same.


#17

Hi,
My name is Jerrie and I am a 53 year old female. I was just diagnosed with this condition a couple of months ago and my dermatologist gave me a cream, but now I am starting to get is all over.
I really don’t want to rub this oitment on every night and I was wondering is there something I can do to get it all at once.
I was wondering if going to a tanning place will help. I have a friend who has psorsis ( i think thats how you spell it) and that is what she does to keep it at bay.
Help…
Thank you
Jerrie


#18

Hi everyone!
My LP started as oral about 6 years ago, since when it has flared up and down, apparently in relation to my stress level, though NOT always. In the meantime, I have developed VLP and have lesions on my skin in various places. The ONLY thing which works on everything is to take steroids, which I did for a while after a vicious outbreak the result of which was to lose about there quarters of my head hair, which I’m not happy about. They tell me that LP kills off the follicles and it won’t regrow. I resisted the steroids as all my friends said the usual “oh you don’t want to take steroids!”. However, after my hair loss got so noticeable, I finally went to the Dermatologist who put me straight on them, which did the trick, a bit too late for me really.
I use Tacrolimus ointment (as “Protopic”) on skin in non-sensitive areas and have a Dermovate lotion for my scalp. Using steroid mouthwash does diddly-squat.
I tried homeopathy, which helped in general terms but did nothing for the LP whatsoever. I am very positive generally about homeopathy, but I think that there are limits to its effectiveness.
I’m frustrated by there being no cure for this, as is, I’m sure, every other sufferer of a non curable condition.
I don’t think it has anything do to with my washing powder, the type of fabrics I wear or the food I eat. I DO find that I itch more in the sun, but I’ve heard that UV therapy may be a treatment.
Right, that’s to start with…has anyone any response or comment?
By the way, I live in the UK and would be particularly interested to hear from other UK members, as our health system is so differnt from that in the States.


#19

I’m 60. Biopsies confirmed LP and LS for me about ten years ago. Also have hypothyroid disease and allergies.

LP most troublesome on scalp. Area turns red, itches, kills hair follicules, and then turns white. I’ve lost about 35% of the hair follicules - various patches like allopecia.

Have OLP too but eat mostly organic diet now and it’s manageable.

LS most troublesome around vagina, but also have it around ribs, on arms. I use clobetasol propionate gel on head and clob. prop. ointment around vagina - 2-3x a week. Don’t use anything for body. Avoid harsh soaps. Have used that mouthwash stuff for mouth flares. Mine stays active everywhere. Clob. curbs the itch but doesn’t “cure” it.

Trying emu oil but no opinion yet. Also trying to get a script for T and E since some say that helps restore vaginal tissue and fusing.

But frankly, mostly troubled over scalp - would give anything to stop the hair follicule deaths. I don’t want to be a bald woman!

Hope I hear something new on this site. If not, support is always nice, too.


#20

I’ve had OLP for about 3 years now. It’s very mild compared to the way it was in the first year or so, and has only begun to get a bit better these last few months. I hope it doesn’t flare really bad again. Anyway, I just wanted to communicate with others who understand what I’m going through.