Healthy Eating Member Introductions

Healthy Eating
#86

Hi, I got diagnosed with ALL w/ Philadelphia Chromosome in September 2005. In November 2005 I was told I was in remission. On December 23, 2005 I had a successfull Bone Marrow Transplant. All of my medical procedures and tests have been done here in Cleveland Ohio at the Cleveland Clinic. I have very good Doctors and Nurses. I am currently having problems getting blood-I get bad reactions and I have the blood banks looking into it along with a team of Doctors. This week I have low hemoglobin counts and I’m already getting the Aranesp shot. So they think it’s my kidneys so today I went for more blood and also an ultrasound of my kidneys and bladder. I have a 1 PM appointment with a specialist tomorrow.

I like connecting with others to learn more about you and to support you in any way I can.

#87

I have had HAE since I was 17 & at 39 have just got a doctor to do the testing to make sure. So many health issues I can’t even believe, but taking it one day at a time. I only wish Doctors were better educated on rare diseases so they wouldn’t make us feel crazy. i fought to get food Allergy tested and am allergic to beef, corn, eggs, and milk. Eliminating these items for a year now has helped a lot when it comes to my stomach problems, but they are still there. i also have 2 small lung nodules found on an ER visit (CAT scan) in Dec 2006. Now on a long jurney of testing since I have to go to a Rheum. doc, enviornmental allergy testing, insomnia, migraine headaches, possible cancer from test levels when they ran the HAE blood work. It is all real scary and so many things are not for sure. The worst part is I have 3 children and a wonderful husband that suffer secon hand when I suffer and am laid up. Not fun. I cherish everyday I’m not down throwing up or feeling sick, swollen, etc… I keep hanging on!!! Smilez:)

#88

I play tennis quite a bit, do not want to get this condition.

#89

because I have had two RTC surgeries and one of the shoulders is giving me bad pain this very night.

#90

I have rosacea.

#91

Tomeet others wuth FA.

#92

I am karina from the Philippines. I have a suspicion my son has cri du chat. however, it remains a suspicion until a test could be conducted, which is not available here in the Phils. once, we tried, but my hubby and i were requested to send the blood samples abroad.

anyways, i am not making myself exclusive to cri du chat, knowing other illness or disease would be an advantage to me and my family.

i hope everyone will be as friendly as the cri du chat support group…hehe

keep in touch, everyone.

#93

Hello. My name is Heather and I have an 11 yr old son with this condition. We found out he had this when he was seven yrs old, after yrs of stress, because we knew something was wrong, but the doctors didn’t listen. I learned real quick that we have to speak up for our children, beacuse they can’t speak for themselves (most of the time). We finally switched drs & the rest is history. He goes to a WONDERFUL doctor in Atlanta. He has all his levels in good standing and he’s a happy healthy boy.

#94

I am interested in this condition because I live with it. I want to learn more about the progression of this condition. I want to connect with other people who have TS or have family members with TS.

#95

I like to chat with others so I can learn how to deal with my situations, I had other chats and it helped me a great deal knowing Im not the only one that down. Maybe I can get some feedback on this site.

#96

I came down with Bacterial Meningitis in 2001 just one day shy of a month after the 9/11 attacks. I’m fully recovered but with long lasting physical scars. I’m hoping to meet more people who have come through such tough times and still remain okay.

#97

hi, I am Michele, a mother of 3 with my youngest being born with bilateral clubbed feet.

#98

I’ve been struggling with OCD since SIX YEARS OF AGE… at a time, BEFORE anybody HAD A NAME FOR IT, or, KNEW ANYTHING ABOUT IT; except for “Dr. Freud”… who thought that: “it HAD SOMETHING TO DO… with TOILET TRAINING in MEN!!!” But then… with “Dr. Freud” IT’S ALL… either ORAL or ANAL!!! 8-)))

In addition… i’ve: BEEN “FEATURED” on ABC TV’s 20/20… i was the SECOND HOARDER… that they EVER HAD ON THE SHOW… nearly 15 YEARS AGO!!!

i’ve been the “resident expert”, in numerous online support groups… many, based in England… and some, in the midwest…

i’ve also been on DOZENS of SSRI medications… some, with DISASTEROUS OUTCOMES (suicidal ideation, extreme weight gain, dehydration, worsening of conditions, etc, etc)… and, CBT programs… with LITTLE or NO positive results!!!

and now… i’m here!!!

#99

I have this condition and have never met another person with it, so this community is very interesting.

#100

I have a 22 year old daughter who is clinically diagnosed with Rett. She did not show the MECP2 genes mutation so we are at a crossroad as to where to go from here. As all of you know, parents need support when dealing with any special needs child and I am no different. I am always looking for new friends who understand what I deal with on a daily basis.

#101

Hi…I developed bms about a year ago…and would like to learn about things used to cope with this condition and where it would come from

#102

Hi,
Many of You maybe knows me as Reinert78, but here I am called merci2006.
I am 29 years old, I am studying occupational therapist and live in Denmak (Europe). I am borned with Treacher Collins Syndrome. I will like to know new peoples.

#103

Hi, I had Susac Syndrome since Dec 2001 and I have a few questions to ask susac’s. But I can’t get any good answers from them b/c of all the crap from that site. I have a lot of problems walking I was walking fine and then I gone down hill went to a walker and then a cane then they were saying that they would get off of it but it did not work out that way.
I want to be connect with any one that can help me out.
xoxo
Blessing
Linda Faye Hamilton

#104

i had a5 years old chiled with fragile x

#105

I have two children with JRA.