I have dealt with episodes of depression since 16, which is when I think I actually understood what was wrong. I am currently 3 years into an episode which is proving treatment resistant and is extremely frustrating to say the least.
I am interested in connecting with others who have suffered from this illness and actually understand what it is like. I am interested in learning about any therapies that people have found helpful, be they traditional or alternative.
I have lived with chronic Pancreaitis for seven years now.For the last two years i 've lived with severe daily pain, which is often excruciting! I am on 80mg of morphine a day as well as three Diconal dailly as well as Creon 10,000, rainitadine, four 1mg pills of lorazepan. All this helps a little, but the constant pain at such a young age (34) is relly getting me down; as i have become a recluse over the last two/two & half years. I am at the end of my teather. My GP and gastroentrologist dont seem very sympathetic or bothered i 'm in agony on a daily basis. two weeks ago they gave me a temp (24hr thing) nerve block, but this did not work for me.Please help. I would like info on latest surgeries and where to go to get it done. Also contact with other suffers.
Hi there - I have Dercum’s Disease and thought I’d check out Care Place.
I have suffered from major depression for many years. I have had ect treatments. Now they are trying medications for bipolar. I suffer everyday with the self hate feelings, only because I have not felt good about myself in a long time.I am looking for someone else who has simular feelings, and how to battle them. The meds I take make me feel like a whale, and I don’t know how to cope.
I have rsd over all body parts,head and trunk,it started after multiple injuries to my left foot,i did not recieve proper treatment,so my condition escalated with each injury and time. My obgyn wants me off of depo-provera,and wants me to have my utrus burned with that solution,so i will not have bone problems. My bones are already 14 yrs older than thy should be. I am hopeful, that other rsd patients, who have it all over,including trunk,and abdomen,have had this done,and can tell me if it worked,and did it exacerbate thier pain,and did the pain continue. I really need a doctor, or others who have had this done,to give me some help with my decision. THANK YOU to anyone who can help,and God Bless all with this disease, and those who treat it.
I have had spinal stinosis, and am being treated for it,
also know Iam a case that cannot be cured,but maybe helped…(?)
Hi i have a 14 month old son that was just diagnose with this syndrome, i also have 6 year that they also want test out for the same thing. I will just like to know what are their future looking like.
Because my husband died of cholangiocarcinoma — diagnosed through autopsy— metastasis to spine, arm, femur and pelvis. I’ve never read of cholangio metastisizing to this extent and continue to read in hopes of confirming that his diagnosis was correct.
I have hydrocephalus and the last shunt revision I had was in 3/2006 and the one before that was in 1982, so a 24year gap in between and I am starting to have real bad headaches again.
My shoulder hurts all the time, especially when I try to do anything tha resembles a cure. I have been doing ice, heat, and rst and there is no improvement. 3 months now. Ideas?
Hi I have geno type 5a and have lived with it for around twenty years or so with a diagnoses for about four I haven’t tried treatment and was looking to make friends
My daughter had iritis 6 years ago and was just diagnosed with it again today.
i have cp i want to know after wwhen we hit age 30 dose it get bad?
Hello,
My name is Trish and Im joining this website because I would like to share my journey through life with diabetes with other fellow diabetics.
I have diabetes and I am just trying to find out more about it.
I have been diagnosed with POS since 2004.
Hi. My name is Alex [alias Gypsy].
Recently my grandson Blake was diagnosed with Aarskog Syndrome. Blake is 10. Such a relief to finally have a diagnosis as for years my daughter Sam and myself have battled with all kinds of senarios in regards to Blakes learning and development.
We are now very lost!
As Blakes grandma I am his main carer and also home schooling teacher.
To date we have received information on what the symptoms of this syndrome are yet nothing on the effects of this syndrome.
Hence we are seeking as much knowledge as possible and would love to connect with other mums, dad,s, grandparents, siblings and anyone else that may be able to shed some light.
Hello, my name is Eleanor and I am 44 years old. On August 5th, 2007 it will be 4 years that I have had RSD.
I use to work as a chiropractic asst. and loved my job. I enjoyed working with people and helping them feel better. January of 2006 I lost my job due to my disability. I have four children. Their names are Rudy 28, Monique 26, Alyssa 14 and Alexandra 13 and my husband Jaime. I also have four grandchildren that belong to my daughter Monique and Nathan her husband,their names are Joseph 8 ,Nathan 6, Ariana 5 and Natalie the baby of the bunch who is 3. I use to love to shop and walk and go places and have fun. I nolonger am able to do any of it do to this pain that is hell. I am always at home I can not drive or walk,or do too much of anything. I have a wonderful family that is very understanding and keep me going. I want to tell you about my youngest daughter Alex, she is an angel she is my right arm or my left hip. She does everything for me. she makes me happy when I am sad, she rubs my back, neck, and FEET, she makes my worse day better, and my better day happy. On a scale from 1-10 my good days are 9, my bad days are a 20+ I take strong medication every day. I wish to GOD I was normal again!
I am interested in this group because I am a survivor of physical and emotional abuse. I am 14 yrs old and became a victim in 2000. With the support of my mother and counseling only to become a survivor. I have anger managment problems, Baby Bipolar.
My father suffers PTSD, NArraccissm, Personality Disorder
My mother suffers from RSD, PTSD, Fibromyaligia, Biopolar and Sexul assault victim. My sister has an eating disoder at the age of 11 and two of my brothers are ADHD/PTSD and my other two brothers deal with anger management. So I am looking to talk with others either have these problems or who are caregivers to people with the same.
My name is Lesa and I have turner syndrome,I found that out at 18. I was devistated! My life has never been the same. I hope to one day have a husband and a family. I live in fear that that I will end up alone becaus of this I feel like a freak,and believe that men will treat me as one. I want to learn about pregnancy in women who have this and breast augmentation for a ‘normal’ women look. I know that boobs don’t make the women but I gotta say that I’m very ashamed of my body partically bucause I’m without.