Weight Loss Member Introductions

weight loss
#122

Hi,
I’m sisterp and I had polio when I was in 2nd grade, about 7 or 8 years old. I was out of school almost the whole school year and did school work at home. My parents are deceased now so don’t have anyone to refer back to. My rememberance is I just could not walk, had to crawl around.

Now I’m 51 years old, worked all my life doing production work then was rear ended by another car in 2004. Started going down hill from there. Have had rotator cuff surgery on left side, now the right side if acting up. Have chronic low back pain that Doctors says is spondylosis and degenerative disc disease. Have constant pain and swelling in my right ankle. My neurosurgeon says I need a spinal fusion but does not believe it has anything to do with having polio as a child. Does any of this sound familiar to anyone else?
Thanks,
sisterp

#123

I want to learn more about this condition because my son has Noonan Syndrome. I would love to connect with people who have been affected by this same disorder

#124

I am interested in Fibrosing Mediastinitis because my mom had this disease and is no longer living. I want to stay updated on others with the disease and keep them and their families in my prayers. Thank you!

#125

I was recently diagnosed w/chronic EBV and I am serching for info on lifestyle change, diet change etc…

#126

Hi, I got diagnosed with ALL w/ Philadelphia Chromosome in September 2005. In November 2005 I was told I was in remission. On December 23, 2005 I had a successfull Bone Marrow Transplant. All of my medical procedures and tests have been done here in Cleveland Ohio at the Cleveland Clinic. I have very good Doctors and Nurses. I am currently having problems getting blood-I get bad reactions and I have the blood banks looking into it along with a team of Doctors. This week I have low hemoglobin counts and I’m already getting the Aranesp shot. So they think it’s my kidneys so today I went for more blood and also an ultrasound of my kidneys and bladder. I have a 1 PM appointment with a specialist tomorrow.

I like connecting with others to learn more about you and to support you in any way I can.

#127

I have had HAE since I was 17 & at 39 have just got a doctor to do the testing to make sure. So many health issues I can’t even believe, but taking it one day at a time. I only wish Doctors were better educated on rare diseases so they wouldn’t make us feel crazy. i fought to get food Allergy tested and am allergic to beef, corn, eggs, and milk. Eliminating these items for a year now has helped a lot when it comes to my stomach problems, but they are still there. i also have 2 small lung nodules found on an ER visit (CAT scan) in Dec 2006. Now on a long jurney of testing since I have to go to a Rheum. doc, enviornmental allergy testing, insomnia, migraine headaches, possible cancer from test levels when they ran the HAE blood work. It is all real scary and so many things are not for sure. The worst part is I have 3 children and a wonderful husband that suffer secon hand when I suffer and am laid up. Not fun. I cherish everyday I’m not down throwing up or feeling sick, swollen, etc… I keep hanging on!!! Smilez:)

#128

Hi, David invited me to join this group. I have had JME for almost 15 years. It would be nice to meet others that are in the same boat.

#129

Last year I was diagnosed with PTB and need to undergo an Anti-Kochs treatment, I was so depressed back then and hearing from other people though I don’t personally know them makes me more stronger… Now last month I just received my Medical Certificate that I am already cleared with the viruses.

#130

because I have had two RTC surgeries and one of the shoulders is giving me bad pain this very night.

#131

i’m a ameloblastoma patient

#132

Have been diagnosed with depression 2 years go and panic anxiety go along with it, have know for a very long time that I’ve been depressed and haven’t dealt well with it, now I am taking medication and would like to take next step and speak with other people and/or get some counseling Thank you

#133

I have had RLS since before they really were talking about it. It is one of many issues I have to deal with. I also have fibromyalgia, IBS among other things

#134

I am karina from the Philippines. I have a suspicion my son has cri du chat. however, it remains a suspicion until a test could be conducted, which is not available here in the Phils. once, we tried, but my hubby and i were requested to send the blood samples abroad.

anyways, i am not making myself exclusive to cri du chat, knowing other illness or disease would be an advantage to me and my family.

i hope everyone will be as friendly as the cri du chat support group…hehe

keep in touch, everyone.

#135

hi, I am Michele, a mother of 3 with my youngest being born with bilateral clubbed feet.

#136

Hi-

I am the parent of a wonderful daughter who was diagnosed with iritis almost 2 years ago. I was seekinginformation about this condition because I had never heard of it and found not many people had.

#137

I came down with Bacterial Meningitis in 2001 just one day shy of a month after the 9/11 attacks. I’m fully recovered but with long lasting physical scars. I’m hoping to meet more people who have come through such tough times and still remain okay.

#138

I’m interested in this condition because I’ve had it on and off for about 6 years now. Every time I have dental work it semms to act up. Interested in hearing about new treatments or anything that someone else has found successful in stopping the pain.

#139

I have this condition and have never met another person with it, so this community is very interesting.

#140

I have a 22 year old daughter who is clinically diagnosed with Rett. She did not show the MECP2 genes mutation so we are at a crossroad as to where to go from here. As all of you know, parents need support when dealing with any special needs child and I am no different. I am always looking for new friends who understand what I deal with on a daily basis.

#141

I am a 24 yr old female. I am just trying to figure out what this is, it’s symptoms, and how to get rid of it…for good… i was told today by my gyn doc that this is what i “might” have… what is it???